Wednesday, December 1, 2010

A quick update

Well, I have a bit of an update on Chance and his heart stuff. He has something called Right Bundle Branch Block. Having this alone, is nothing and millions of people have it and don’t even know it. The problem is that people that have any kind of symptoms typically have another heart condition, which causes symptoms and then when that condition is found, the RBBB is found also. He does not appear to have another condition, but is symptomatic. Today, we saw the cardiologist. He completed another echo in his office and said that he can’t see if Chance has a hole in his heart or not. He said that it’s difficult to see the heart well on an echo when one had lots of chest muscles. Damn that son of my for being all muscley and in shape and shit.

Soooo…for now, we wait, BUT, what I do know is that he has not had a heart attack, he has nothing in his blood work that indicates his heart muscle is being damaged and whatever he has is NOT life threatening. I can breathe again. I’ll find out shortly if I can sleep. I’ve spent the last 4 weeks or so spending every second wondering if he was going to drop dead. Scary shit, let me just tell ya!!!

Mid January, he’s having a test called the table-tilt test, then we’ll see the dr again at the end of January. At that point, he will most likely be scheduled to have a procedure done that will allow the dr to look at his heart from the inside. They do this by using minor sedation and then putting a camera into his leg and up through his chest to view the heart from the inside. That test will tell us if he had a hole in his heart or any other condition that will require treatment.  Also, the cardiologist we are seeing can do repairs to both electrical and structural issues, so we will not need to be seen by anyone else no matter what the final diagnosis is.

Chance has throbbing pain in the center of his chest all the time, he never gets any relief. If he exerts himself in any way at all, it becomes worse and he can’t catch his breath. He is weak all of the time and he tires easily. On top of that, he wakes in the night in pain, so he’s not sleeping well either. He is a JOY to live with, let me tell you. I have to call the dr tomorrow to discuss pain management until we find out the full diagnosis and treatment.

So, all of that to say, I don’t fucking know what’s wrong with my kid, but what I do know is that he’s not going to die and I can live with that for the short term.

9 comments:

  1. God, Girl, I can't imagine how terrifying that must be for you and for him. I'm worried for y'all. I'm worried for Michelle and I'm worried for you and I've decided the three of us and Leiah just need to all move to one place. I'm thinking like on "Big Love" where the backyards are connected so we can physically be there for one another. Yeah, I know I'm a genius.

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  2. That's some scary stuff. Poor kid; I can't imagine having to deal with that at his age. Let's hope that his cardiologist can fix it. It kills me to have to say cardiologist and kid in the same breath. You're a good, strong mommy and I'm sorry you're dealing with this.

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  3. Good grief. I saw on FB about y'all being at the ER again. What a load of stress to be dealing with! I'm so,so glad it's not life threatening and I'll continue to keep him in my prayers. Hopefully his doc can find a permanent way to relieve his pain. Hang in there girl. :)

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  4. oh my gosh, I am so sorry! How scary! I am thinking about you all and hope you get the answers you need very soon!

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  5. Well it's probably not the news you wanted to hear. But a whole lot better than new that you could of heard...

    hang in there you are in our thoughts and prayers.

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  6. Wow... good news and scary stuff all at once.. Here's hoping that you find a good position for him to sleep in so you all can get some much deserved/needed rest. I'm so happy it's not life threatening and my fingers are crossed that you find a way to make it all go away. Fast.

    M

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  7. Not dying is a good thing. I'm gonna be happy if that's what I hear today at 3.

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  8. Oh, Girl! I am glad that you have your worry lessened a little. But I know a little of the worry that you are burdened with. :(

    And Chase, I really hope he finds relief soon! Hugs to you both my dear. XXOO

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  9. What a relief!! I'm sorry that he's having so many issues but I'm glad that what news you have gotten is GOOD news, considering the circumstances!

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